Wednesday, September 2, 2009

A Pair of Shoes

A Pair of Shoes
Author Unknown

I am wearing a pair of shoes.
They are ugly shoes.

Uncomfortable shoes.

I hate my shoes.


Each day I wear them, and wish I had another pair.
Some days my shoes hurt so bad I do not think I can take another step.
Yet, I continue to wear them.

I get funny looks wearing these shoes.
They are looks of sympathy.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.

To truly understand these shoes, you must walk in them.

But, once you put them on, you can never take them off.

I now realize that I am not the only one who wears these shoes.
There are many pairs in this world.


Some women are like me and ache daily as they try and walk in them.

Some have learned how to walk in them so they don't hurt quite as much.

Some have worn the shoes so long that days will go by before they think about how much they hurt.


No woman deserves to wear these shoes.

Yet, because of these shoes, I am a stronger woman.

These shoes have given me the strength to face anything.

They have made me who I am.

I will forever walk in the shoes of a woman who has lost her child.


To say I hate my shoes is an understatement. At times, it is almost unbearable to wear them. Other times, I feel numb to them. Today marks three months since Brienna was born. I miss her and ache for her. I am sad today. I worry that people think I should be moving on, shouldn't be as sad anymore. But I can't help it ... I am sad and wish my baby was here with me. All day today, I've been getting texts from my family and friends, telling me that they are thinking about me. They make me feel better, and I am lucky to have them in my life. Knowing that other people love and hurt for Brienna comforts me ... it helps validates my feelings in a way. Nothing can take the pain away, but it helps take the loneliness away, and I am thankful for that. Tomorrow is a new day, one that will hopefully be brighter. But today, I am sad.


I love you and miss you Brienna Marie ...


Monday, August 31, 2009

Breaking the (blog) Silence

It's been so long since I've posted, but I need to ask for your help. Please, please, please pray for little Brianna and her parents and sister. Brianna has full Trisomy 18, and is battling for her life right now. Her smile makes you melt and she just exudes happiness. Her mom Brenda is a.maz.ing and such a wonderful person. This little girl gave me such hope and inspiration while I was pregnant with Brienna and I wish there was more I could do for them ... my heart aches to think of what they are going through ... so please, help me pray for Brianna and her family.

Tuesday, July 28, 2009

The Ugly Truth

The ugly truth is something no one wants to seem to hear. Really, I can't blame them.

Grief is unpredictable. It has it's own rhythm and most definitely marches to the beat of it's own drum.

It has been eight weeks today, eight weeks. Where have they gone? I have no idea ... the ache has not lessened. If it's possible, it hurts worse ... there is a constant sense that someone is missing. A piece of me is just gone forever, and learning to live with that is beyond painful. I long for my baby and I physically hurt that she is not here ...

I am the elephant in the room. I thought it was bad before Brienna was born, but now, it is ten times worse. No one knows what to say or how to act. Again, I can't blame them. I myself struggle with how to act. If I act happy, will people assume that I'm healed? Because that is what I do. I act as if everything is "okay" when it most certainly is not. Not a day has gone by that I don't break down in tears. Not one day. And I fear the day that I don't cry. Because if I'm not crying, then things are changing. Every moment away from June 2 feels like a betrayal of sorts.

On Friday, I sat in the parking lot of my favorite coffee shop, having an internal debate with myself about whether or not to go in. The last time I was there, I was pregnant. And the girl who made my chai always commented on Toot. I sat there for a good ten minutes because I have no idea how to tell strangers what happened. In the end, I decided to go for it. And it was a different girl; bullet dodged. But those scenarios are everywhere. The place I got my nails done, the hairdresser, the grocery store ... I am constantly worried about what to say, or how to explain what happened. I worry about meeting new people and being asked if I have children. I worry that I'll say no, because it is easier than saying that my daughter died.

It seems like everyone keeps waiting for me to move on, or to heal. I don't think you ever move on. I think it's about learning to integrate the grief into your life. Just because I smile or laugh, doesn't mean that I don't ache inside. Brienna is always on my mind and in my heart. I have a new "normal" and am trying to adjust as best I can. But incorporating grief into every day life is difficult ... like I said, it's unpredictable and has it's own rhythm - it's the dance partner that nobody wants, and I'm stuck with it forever. Yet the fact remains that I would do it all over again, even knowing the outcome. Just to hold my sweet baby girl and kiss her and marvel at her perfection. It truly is better to have loved and lost, than to never have loved at all ...

Remembering

Go ahead and mention my child,
The one that died, you know.
Don't worry about hurting me further.
The depth of my pain doesn't show.
Don't worry about making me cry.
I'm already crying inside.
Help me to heal by releasing the tears that I try to hide.
I'm hurt when you just keep silent,
Pretending she didn't exist.
I'd rather you mention my child,
Knowing that she has been missed.
You asked me how I was doing.
I say "pretty good" or "fine".
But healing is something ongoing
I feel it will take a lifetime.
~ Elizabeth Dent ~

I love you Brienna, always. And I miss you more than words can ever say ...

Friday, July 24, 2009

Long Time, No Post

It's been awhile. I have to admit that it is draining to write all my thoughts and feelings. Yet I want them all recorded because my biggest fear is that I'll forget. I'm tweaking some of the posts that I wrote and never posted (I can't share everything) and will post them soon ...

I love you and miss you Brienna Marie ...

Thursday, July 2, 2009

One Month

I cannot believe that it has been one month since Brienna was born. One month since I last held her in my arms, one month since I smelled her sweet smell, one month since I wiped her little bottom, one month since I changed her clothes, one month since I caressed her soft skin, one month since I rocked her, one month since I kissed her most perfect button nose ... I have no idea where this month went. The ache is no less now than it was a month ago. I would give anything to turn the clock back to one month ago. To still have Brienna safe inside me. All the heartache and pain I thought I experienced while pregnant pales in comparison to the grief I feel now ... I just miss my daughter :(

I love you sweet Brienna ...

Sunday, June 14, 2009

On My Mind ...

In no particular order, these are the things that I think about and are on my mind ...
  • I am petrified I am going to forget.
  • It is exhausting and incredibly draining to pretend to be "okay" for other people.
  • I love the little reminders on my body that I did indeed have a baby.
  • Brienna's name is Celtic and means "strong, she ascends" ... I love her name.
  • I have a bruise on my right hand from a blown IV. As it fades, I get sadder and sadder because when I see it now, I think of Brienna.
  • I secretly like the pain associated with my tear because it reminds of my sweet baby girl.
  • I wore a normal, pre-pregnancy bra on Thursday and it made me ridiculously sad.
  • I despise looking in the mirror because it's a reminder that I no longer have Brienna in my belly.
  • I hate my jelly belly.
  • The shirt I was wearing when I held Brienna is in my room, folded up with the camisole I wore during delivery. I doubt I will ever wash either of them.
  • I saw my one pair of maternity jeans today when I was cleaning my room and almost cried.
  • When I showered the day after Brienna was born, I felt like I was washing her away and I cried the entire time.
  • Every time I visit her at the cemetery, I want to throw myself on the ground and stay with her. P has prevented me from doing this.
  • Sometimes, breathing hurts.
  • Time seems to stand still. The only time it moves is when I'm sleeping.
  • Everything seems so surreal that at times I wonder if I did indeed have a baby ...
  • I found a poem online yesterday that brings me to tears every time I read it. I changed the his to a her ... the author is unknown:
Tiny Angel rest your wings
Sit with me for awhile.
How I long to hold your hand,
And see your tender smile.
Tiny Angel, look at me,
I want this image clear ...
That I will forget your precious face
Is my biggest fear.
Tiny Angel can you tell me
Why you have gone away?
You weren't here for very long ...
Why is it you couldn't stay?
Tiny Angel shook her head,
"These things I do not know ...
But I do know that you love me,
And that I love you so".
  • I constantly wonder if Brienna knew she was dying when she was inside me and if she was scared.
  • I feel like a failure because I couldn't protect my daughter. The counselor I see says that maybe she died to protect us from seeing her have to suffer. A little baby shouldn't have to protect her parents ...
  • I know she is in God's hands and with our loved ones that have already died, but I hate that she is alone in Heaven. I wish I could be with her ...
  • I have less fear of dying someday because I know it will mean that I get to see my daughter again.
  • I hope beyond hope that Brienna knew we loved her.
  • I fear we didn't make enough memories with her while I was pregnant.
  • My husband goes back to work tomorrow and I am dreading him not being home.
  • I cannot believe it has been 12 days since my baby was born ... and died.
  • Natalie Cole's "I Miss You Like Crazy" is constantly stuck in my head.
  • I hate the word stillborn.
  • Because Brienna died at birth, I fear people will think she didn't exist. She so existed.
  • I have no idea how to do this ...

Saturday, June 13, 2009

Meeting Brienna

I thought it might be therapeutic to talk about the day Brienna was actually born ... so here goes.

As I mentioned before, we went in Monday night to get the gel to ripen my cervix. I was apparently about 3cm dilated that night; they gave me the gel and sent me on my merry way. I was told they would monitor Toot's heartbeat for 90 minutes and was all hooked up and prepared to wait, but I guess they talked to my doctor who said I could just go home. That kinda made me sad, because I knew if she didn't have T18, they would most certainly have monitored her. Their focus just wasn't on her, which was hard to accept ...

I was told to wait for a phone call Tuesday morning and sure enough, at 6:30, the phone rang and they told me to come in at 7:30. P and I certainly didn't sleep well Monday night, so were wide awake when the call came in. I think I was just filled with nervous energy ... we were late (as usual) and didn't get to take any pictures, as I had wanted to. There is one of me in the car, but none of us as a family, in our house before going in ...

After checking in, we were shown right to our room. They gave us the biggest, nicest labor and delivery suite they had, which we were very grateful for. It had lots of windows, and plenty of space for visitors. It was more homey than the one we were shown on our tour of the hospital, and I felt very comfortable there. My day nurse, Cathy, was great. We immediately knew we were in good hands, which was very comforting. Cathy was very honest with us and told us that oftentimes Pitocin can take days to work and that if things didn't progress by 6ish, they would turn the Pitocin off, let me rest and eat and start again in the morning. Cathy had me change into a beautiful hospital johnny and things got started ...

The Pitocin went on about 9AM. I was hooked up to the monitor, and was already having contractions, but couldn't feel them. We listened to Toot's heartbeat for awhile and I so wish we had recorded it at that point. In our birth plan, we had opted to not continuously monitor her heartbeat. We knew that there was a chance labor would cause her distress, and I knew if we saw she was in distress, I'd ask for an emergency C-section, something we had talked about at length and were going to try to avoid. We had planned on listening sporadically throughout the day, but I think I just got nervous and we never did again. I regret that. I started feeling the contractions, but none were painful, so they kept increasing the Pitocin. At noontime, I was still not having any pain, and fully planned on being there for days ...

At about 3:00, I really started to feel the contractions. They were much more painful than they had been. I started to get really nauseous with them too, and got sick several times. Then at 4:00, my water broke. Because of the polyhydramnios, it was this huge gush of fluid. I had just finished getting sick, so was standing at the door of the bathroom and it just went everywhere. I immediately burst into tears because it was then that I knew Toot was really going to arrive. Up until that point, I kept convincing myself that we had time. I look back at the pictures from that morning: me in my ugly gown, but I'm smiling in every one; still full of hope ...

My water broke about 4 more times after that - there was A LOT of fluid. The nurse was even amazed ... P helped me clean up and we kinda just looked at each other with this helpless feeling ... it was truly out of our control. At about 5:15-5:30, I opted for the epidural. I was 6cm at that point and as soon as the epidural was done, I was 10cm dilated and ready to push. At this point it was a little after 6:00, but because things had progressed so quickly, our families weren't at the hospital yet. The doctor came in and said that we could wait a little bit to push, until our families arrived so we decided to wait until about 6:30.

6:30 came and went, because it was change of shift for the doctors. Then at 7:00 it was change of shift for the nurses. So we really didn't start pushing until just before 8:00. I was completely comfortable because of the epidural, but very antsy. My night nurse Joanne was even better than my day nurse. They could not have been more different in terms of personalities, but both were perfect ... I pushed for about 15 minutes and Joanne called the doctor in because it looked like Toot was ready to make her entrance ... the doctor took forever to come and had to be paged again. Our baby nurse, Sue came in at that point and she too was amazing. The NICU nurse practitioner was on standby just outside the room, which we had requested and then it was time. The doctor came in and the pushing resumed ... they were all whispering at one point and I got very nervous. But I asked my nurse, and they weren't talking about Toot.

At 8:50 PM, Brienna Marie was born. I could have sworn that I saw her little arm moving when she came out ... P cut the umbilical cord and Sue and the NICU NP took her for a quick exam ... I will never, ever forget them saying that she didn't have a heartbeat. P said I made the saddest sound he's ever heard ... and then we both just started crying. They brought Brienna to us right away and I held her and just cried and cried. P and I just hugged her and each other and were so sad ...

I ended up tearing very badly. It turns out that that is what the doctors had been whispering about. They asked to do an episiotomy, and I felt like the only option was to do one ... so they did. Despite that, I ended up with a "nasty" 3rd degree tear that required "extensive repair" - it took them over 90 minutes to sew me up - and I now have a "designer vagina" - which apparently people pay big bucks for - who knew?

While they were sewing me up, P was with Brienna the entire time. He bathed her and rocked her and it simultaneously broke and melted my heart to see them together. I will write more about him in a separate post - he totally blew me away and I am more in love with him now than ever before ...

The NILMDTS photographer was in the room as soon as Brienna was born. Sharon sat with me and talked to me and it was so comforting because she was in my shoes a few years ago. The chaplain, Caroline, was also there (we had met her earlier in the day and loved her. When it neared time for Toot's arrival, the nurse paged her and though she was over an hour away, she came back to the hospital to be with us).

Things were somewhat delayed because of them sewing me up, but P would bring Brienna to me and I would hold her for a bit and then he would walk with her around the room and just rock her. Sharon was able to take lots of pictures of her and I got to watch my little girl with her daddy ...

When they were finally done sewing me up, Caroline and Joanne went to get our families. They of course were devastated and I was nervous about everyone being there, but it ended up being really nice. Caroline baptized Brienna for us, and having our parents and sisters there for that was touching. It was the most beautiful baptism, and I am so thankful that Caroline came back for us ...

Once everyone was gone, P just crawled into bed with me and the three of us laid there cuddling. We changed Brienna's diaper, dressed her in one of her adorable little outfits and just held her. The nurses were great and totally respected our privacy, yet periodically checked in on us. Being with Brienna was truly amazing. She's the most beautiful baby I had ever seen. She had this perfect little button nose and the softest skin I've ever touched. She had tiny little freckles on her forehead and the cutest little lips I'd ever seen. She smelled so sweet and innocent and it just took my breath away that we had created this little miracle ...

We eventually called the funeral home and they came to pick Brienna up at about 2AM. Saying goodbye was nearly impossible. How do you fit a lifetime's worth of hugs and kisses and cuddling into 5 hours with your baby?? You can't. As much as we tried to prepare ourselves for that moment, you just cannot prepare to say goodbye to your child ... we handed her to Sue (who was amazing and treated Brienna like her own baby) who walked with Steve out to the car. And she was gone. I can't even get into my emotions yet because it's just too painful.

At about 3AM, we were moved to a new room. We had requested ahead of time not to be on a postpartum floor, and were instead sent to a surgical floor, which suited us just fine. I would gladly have left the hospital altogether, but because of my tearing, they wanted to keep me overnight. P climbed into bed with me in the new room and we just held each other and cried. I don't think I slept much at all. The doctors did rounds at 7ish and said I could go in the afternoon once the Foley came out and I had peed. The Foley came out and P and I just laid there a little longer ... we were both exhausted after not sleeping Monday night either.

I finally got out of bed around 9 and was walking around the room because walking was more comfortable than sitting. Caroline came to visit and was amazed that I was up and about because she "saw my tear and OUCH". That she came meant so much to me. Melissa, the social worker we had worked with at the MFM clinic, also came to visit. Everyone was so compassionate, and it really meant the world to P and I.

We were able to go home just after 12, and I was glad to leave, but so sad at the same time. We were leaving without our baby ... I told P that deep in my heart of hearts I didn't think we'd get to bring her home. He said he had felt the same way ... but we both thought she'd be born alive. It just wasn't an option any other way ... and despite the fact that so many T18 babies are born still, I blame myself. I just wish we had pushed right away. I have no idea if it would have made a difference, but what if it would have?

I have so many more thoughts and feelings, but like I said, I just can't go there quite yet. Every day is a struggle to get through ... I feel so lost, and this overwhelming sense of "now what?" It sucks. And I just miss my baby girl so much ... I would do anything to have her back. If I could turn back the clock, I would. In a heartbeat.

Friday, June 5, 2009

No words

Our precious angel was born into Heaven on June 2, 2009 at 8:50 PM. The happiest and saddest day of my life ... our little girl, Brienna Marie was perfect. She was the most beautiful baby I have ever seen in my entire life. She had the softest skin and the most perfect button nose ... I can still feel her in my arms, smell her sweet smell and I long for just one more moment with her. One more chance to kiss her cheek, touch her lips and tell her that I love her with all my heart ... P and I are so sad she is gone. It feels surreal and I feel hollow ... like I am missing a piece of me.
I miss her so much :(

Monday, June 1, 2009

Prayers Answered

I was dreading going into the hospital tonight. Absolutely dreading it. I didn't want to have to be there overnight, only to potentially not even progress far enough to be moved to labor and delivery tomorrow morning. I hate being out of my comfort zone and I hated that I wouldn't be able to be in my own bed with P and Toot ... I got a phone call today from one of the nurses at the MFM clinic saying that they were "busting at the seams" and would I be willing to come in, get the Cervidil tonight, but go home and wait until they call me in the morning when they have a room available. I felt like a weight had been lifted. I am more than okay with that! And so is P ... we were in the car together when we got the news and he said, oh good, I was having a hard time thinking about how to kidnap you :) One more night at home feels like a gift ... and it gives Toot just a little more time to come on her terms ...

I am not sure I ever posted about my NILMDTS photographer, but I have a saved post somewhere and will eventually. She did maternity pictures for us and we loved her. We got our pictures and they were amazing. This was about 5 weeks ago and I've emailed her several times but heard nothing and couldn't figure out what happened, or if we did something or if she just wasn't interested anymore. I called her today in one last attempt to let her know we were being induced tomorrow. I didn't hear back from her and was really sad. As P and I walked in the door from the hospital, the phone was ringing. It was her! And she was so apologetic about not getting back to me but said she is available tomorrow, Wednesday and Thursday and will wait for our call because she would love to photograph Toot when she arrives. I am elated. I had so wanted her to be there and now she will. It's one less thing to worry about, and it feels like things are falling into place. That can only be the work of God, and I am so appreciative.

As for the hospital, it was totally fine. My nurse for the short time I was there was so nice and as she was about to leave the room, she stopped and came back over me and said, I just want you to know that I read your birth plan, and congratulations on your amazing baby. She started to cry, then apologized for crying and of course I started crying and told her it was okay, but it's just so comforting to be in good hands. The MD who inserted the Cervidil told me that they have a "special nurse" lined up for me tomorrow, so it seems like we'll be in good hands then too.

So thank you prayer warriors ... from the bottom of my heart, thank you!
Hi Toot,

My little June bug! I never thought I'd end up with a June baby, yet here it is, June 1! Where did the time go?!

So my sweet Toot ... today is the day the doctors are going to start the process of inducing labor. I had so hoped you'd decide on your own that you were ready to come out, but that's okay ... it just proves you're our baby - stubborn like your mom and late like your dad :) Just know that if I could, I would keep you with me forever. I feel like I am kicking you out of your cozy, safe home, and I'm sorry for that. I would love to keep you with me, but the doctors aren't giving me much of a choice ... my brain knows that they are probably right, but my heart feels heavy ...

I feel like there is so much to say to you today, yet I don't know where to begin. You've been kicking like crazy all weekend and it never fails to make me smile! You've been such a joy to me and your dad these last forty weeks Toot. We love you so much. You are truly an inspiration and not just to me. To everyone that knows about you. Your dad and I feel so lucky to have been chosen as your parents. You have been such a gift and I can only hope that we get a little more time with you ... we are so excited to finally meet you!!

I have to thank you Toot. You have truly given me the strength to muddle through this journey. You give me purpose in life, you make me get out of bed every day and you have truly made me a different (and I hope better) person. I cannot thank you enough for all you have done. You've changed me and I love you for it.

If I'm being truly honest, I fear myself without you. I fear the emptiness of knowing you're not in my belly anymore. I fear that without you, I won't know who I am or what my purpose is. I fear that if we have to say goodbye, it will break me. I fear that you won't know how much I love you, or that I would have done anything to take this away for you ... and I'm sorry for all the tears today sweet girl. Please don't think I'm sad to meet you, trust me, I have been waiting for this day my whole life. You're my daughter! And I long to hear your sweet little cry and I long to hold you and rock you and show you just how much you are loved ... so the tears are tears of love, tears of fear and tears of uncertainty. And I cannot seem to stop them!

I love you Toot. It doesn't seem adequate enough, but I do. And if I have to fit an entire lifetime's worth of love into just a few moments, so be it. But know that I truly love you with all my heart. That carrying you has been the most wonderful gift and that a piece of you will forever be with me. Always.

I love you.

Love always,
Mom

P.S. Rabbits Rabbits! Binkie says that on the first of every month, and it's supposed to bring good luck, so it's tradition in our family to say it to everyone on the first of the month, every month ... so Rabbits Rabbits my sweet girl!!